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Am J Geriatr Psychiatry 12:240-249, June 2004
© 2004 American Association for Geriatric Psychiatry


Clinical Review

Family Caregiving of Persons With Dementia

Prevalence, Health Effects, and Support Strategies

Richard Schulz, Ph.D., and Lynn M. Martire, Ph.D.

Received March 7, 2003; revised September 24, 2003; accepted October 28, 2004. From the University Center for Social and Urban Research, University of Pittsburgh, Pittsburgh, PA. Send correspondence to Richard Schultz, Ph.D., Professor of Psychiatry, Director, University Center for Social and Urban Research, University of Pittsburgh, 121 University Place, 6th Floor, Pittsburgh, PA 15260. e-mail: schultz{at}pitt.edu
©2004 American Association for Geriatric Psychiatry

ABSTRACT

The authors summarize the dementia caregiving literature and provide recommendations regarding practice guidelines for health professionals working with caregivers. Family caregiving of older persons with disability has become commonplace in the United States because of increases in life expectancy and the aging of the population, with resulting higher prevalence of chronic diseases and associated disabilities, increased constraints in healthcare reimbursement, and advances in medical technology. As a result, family members are increasingly being asked to perform complex tasks similar to those carried out by paid health or social service providers, often at great cost to their own well-being and great benefit to their relatives and society as a whole. The public health significance of caregiving has spawned an extensive literature in this area, much of it focused on dementia caregiving because of the unique and extreme challenges associated with caring for someone with cognitive impairment. This article summarizes the literature on dementia caregiving, identifies key issues and major findings regarding the definition and prevalence of caregiving, describes the psychiatric and physical health effects of caregiving, and reviews various intervention approaches to improving caregiver burden, depression, and quality of life. Authors review practice guidelines and recommendations for healthcare providers in light of the empirical literature on family caregiving.

Key Words: Alzheimer Disease • Dementias • Family Caregiving




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